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What acceptable level of platelets do you shoot for on HU?
Blood Cancers & Disorders | Last Active: Oct 6 10:05am | Replies (77)Comment receiving replies
@pps26
Hang in there., I’m a 76 year old female also very active. Was diagnosed with ET JAK2 mutation in April this year..I had to start with HU very slowly because of side effects.
Digestive, headaches etc. It’s an emotional roller coaster in the beginning…. the body has to adjust to the new normal. My platelets were over 900k and now in 450 range. My mornings are best and that way I can stay active. Afternoon into evening fatigue is the worst side effect. I really try to take a daily nap that I use a meditation app for. Puts me right out for about 1 to 1.5 hours. Really helps . Think of HU as my daily vitamin that helps me live to see my grandkids grow up. Better than the alternative. Best to you my MPN friend!
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@susita
Thanks , I've had ET with JAK2 Mutation for 9 years.
Starting number was high 800 K.
I'm 77.
HU had never bothered me until this May when it made me anemic.
So took a break and will restart drug after tomorrow 's appointment...I assume.
Stopping drug...anemia was gone in a week.
I don't get why my doc always wants my platelets way down in the 200ks.
I am fine at high normal in the 400 ks.
And take less HU.
We shall see what happens.