@jtg8771 Hi, I’m so sorry that your daughter is having so much trouble. I strongly suggest another doctor. You really need to have faith in your doctor and feel that he/she is doing everything possible. When I was diagnosed with CLIPPERS disease, my husband wasn’t really comfortable with the neurologist, so he called the medical center at the university. We got a great doctor who directs my care and local doctors follow her directions. It has worked out well. University medical centers have the research and knowledge that’s needed! My sister also has an autoimmune disease and she receives care at University of Michigan. Please try it. Our lives are mostly back to normal, as long as we follow all the rules! Becky