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Autoimmune hepatitis*

Autoimmune Diseases | Last Active: Apr 11, 2023 | Replies (116)
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@gering69341

I meant to say Rifaxin.Water pills.140mgs of spironlactone and 4×a day of lactalose.Helps you go bathroom.Thats where good and bad days come in.The doctor tells me my immune system is basically shot so they keep me on 500mgs of ciprofloxacin.Did this disease ever just calm down?They say it's something not very much people have?When did it first show up.Sorry for so many questions!Doctors say everyone is different.we will learn as we go along.?

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Replies to "I meant to say Rifaxin.Water pills.140mgs of spironlactone and 4×a day of lactalose.Helps you go bathroom.Thats..."
Rosemary, Volunteer Mentor | @rosemarya | May 29, 2019

@gering69341, You are absolutely correct that we learn as we go along. I was diagnosed with a rare liver disease, myself, (Primary Sclerosing Cholangitis, PSC). Early on, my doctors also told me that every one is different with the symptoms and responses to the medications and treatment. It can be frightening and lonely in addition to living with miserable symptoms. I am happy that you have shared some of your story. Would you care to join me in the Transplant Discussion Group? Here are somr discussions that I think will be of interest to you because you can read about, and meet others who are sharing about their pretransplant experiences.
https://connect.mayoclinic.org/discussion/liver-support-group/https://connect.mayoclinic.org/discussion/primay-biliary-cholagitis-and-autoimmune-hepattitis/https://connect.mayoclinic.org/discussion/its-not-all-about-the-meld-score/

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