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What acceptable level of platelets do you shoot for on HU?
Blood Cancers & Disorders | Last Active: Oct 6 10:05am | Replies (77)Comment receiving replies
I am 77 and recently diagnosed with ET with concern for MPN/MDS overlap. My oncologist referred me to another and that appt is on 9/28.
I take 500mg HU daily and struggling with side effects. I also have Hasimotos and take 75mg f Levoxyl daily. My lower calves bother me on a daily basis. I put on Aspercream before bed to help me sleep.
Current platelets around 650.
Was a very active woman prior to all this... it has knocked the wind out of my sails for sure with daily exhaustion.
Getting old sure isn't for sissies!
Best to you!
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@pps26
Hang in there., I’m a 76 year old female also very active. Was diagnosed with ET JAK2 mutation in April this year..I had to start with HU very slowly because of side effects.
Digestive, headaches etc. It’s an emotional roller coaster in the beginning…. the body has to adjust to the new normal. My platelets were over 900k and now in 450 range. My mornings are best and that way I can stay active. Afternoon into evening fatigue is the worst side effect. I really try to take a daily nap that I use a meditation app for. Puts me right out for about 1 to 1.5 hours. Really helps . Think of HU as my daily vitamin that helps me live to see my grandkids grow up. Better than the alternative. Best to you my MPN friend!