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Autoimmune hepatitis*

Autoimmune Diseases | Last Active: Apr 11, 2023 | Replies (116)

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@kanaazpereira

Hi @luserm1,

I hope all went well at your appointment. Do let us know if you have any questions or updates; we'd love to hear back from you.

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Replies to "Hi @luserm1, I hope all went well at your appointment. Do let us know if you..."

Hi , I saw the first liver specialist last week and he reviewed all my labs, elastrography and biopsy results. He told my lab work and biopsy results were inconsistent with AIH. He stated that the cirrhosis was caused by fatty liver. Since there is no treatment for fatty liver, he told me that watching my diet and exercising "should" keep it from progressing. He told me that "for some reason my liver was still functioning " though I'm at a stage 4 and so I did not need a liver transplant.

I'm right now waiting to be seen by the second liver specialist. I'll update you all as soon as I'm seen. God bless

@luserm1, I been thinking of you and I just wanted to drop in and say , Hi. I hope that you are finding some answers to help you move forward.
Rosemary

Hi Rosemary, well I saw the second liver specialist and he’s not ready to rule out AIH. He’s going to send the biopsy tissue samples to get analyzed at UT Southwestern in Dallas. I return to see him in December for the results. In the meantime, I need to get an US next month to monitor for liver cancer. Apparently I’ll need to get one every 6 months. So I guess it’s nack to waiting again.
Thanks for following up with me.

@luserm1 - It is wonderful to hear that you liver doctors are giving you a complete work-up and also monitoring you closely!
Waiting is not fun! As far as the 6 month US (ultra sound) - at least they are noninvasive procedures.

While you are waiting, did these liver doctors make any medicine recommendations to your GI?
Hope you are feeling okay.
Rosemart

No not yet. I have an appointment coming up with my GI so I’m going to ask then.

@luserm1, It sounds like your doctors are working together on this!
Keep in mind, that correct diagnosis can often take multiple tests that compare results over a period of time.
Rosemary