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National Jewish Patient Conference 9/19/26

MAC & Bronchiectasis | Last Active: Oct 16 7:46pm | Replies (10)

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Profile picture for Sue, Volunteer Mentor @sueinmn

Highlights from yesterday -
Research is getting more organized - across the globe. - Studies are underway to follow Brinsupri users for up to 5 years.
- NJH is doing phage therapy on their third or fourth patient who was otherwise treatment-resistant, and building a databank to facilitate developing it as a wider treatment.

Airway clearance is being called one of the cornerstones of managing bronchiectasis and NTM, with experience backing the assertions. Throughout the day, presenters stressed that neither Brinsupri nor antibiotic therapy replaces airway clearance.

Dr Daly and others repeated throughout the day that a positive sputum sample should not automatically lead to antibiotic therapy. This will make me more confident in suggesting to anyone being prescribed the drugs based only on a culture that they should be seeking treatment at a center of excellence. This is really important as more and more asymptomatic people are being diagnosed with bronchiectasis and/or NTM as an incidental finding when getting a CT scan for lung cancer, heart disease, or some other issue.

Dr Honda was on way at the end of the day, and given too little time (in my opinion) to talk about a topic we all have questions about - sterilization. Read my comments here:
https://connect.mayoclinic.org/discussion/the-latest-word-from-dr-honda-on-sterilizing-boiling/
I'm sorry that I am unable to go into detail answering all your questions that will arise, so if you did not enroll, you will have to wait for the videos to hit YouTube.

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Replies to "Highlights from yesterday - Research is getting more organized - across the globe. - Studies are..."

@sueinmn

The videos are not available like last year for $25? Are they now available on Youtube? All of them?