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Autoimmune hepatitis*

Autoimmune Diseases | Last Active: 5 days ago | Replies (118)

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@rosemarya

@luserm1 - I was once diagnosed with autoimmune hepatitis by my GI after completing many blood tests for various liver diseases. I do not have the other issues that you describe.
My liver function numbers were not normal was why I had to undergo the testing. When I began treatment for autoimmune hepatitis (AIH), I was also treated with prednisone. I seem to recall that there were liver biopsies involved, also. When my GI was not convinced that I had AIH ( because no positive results were coming from prednisone treatment) he referred me to the next level of care - liver specialist. Additional test was able to determine the accurate diagnosis.
Your GI is doing the right thing to make the referral for you to be seen by liver specialist.
I hope you are feeling well. Let me know if you have any questions for me.
Rosemary

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Replies to "@luserm1 - I was once diagnosed with autoimmune hepatitis by my GI after completing many blood..."

@luserm1 - I believe your GI is correct to make no med changes for now. The liver is affected by everything that goes into your body.
Rosemary

We're you also diagnosed with cirrhosis if you don't mind my asking? I understand if you rather not say.

@luserm1, I was diagnosed with Primary Sclerosing Cholangitis (PSC) after doctor performed an endoscopic retrograde cholangiopancreatography (ERCP). Dye aided to get images of my biliary tree showing the telltale signs of scarring and blocking of my bile ducts.
So- I learned that I had a progressive liver disease. There was some scarring in my liver that was identified by liver biopsies. The term cirrhosis was never used until later.
After my initial 'shock' at the diagnosis, I was really comforted and impressed at the depth of knowledge that the liver specialist had. My home GI continued to monitor me, and he frequently consulted with the liver doc.

When you see the liver specialist?
I welcome any questions.
Rosemary

I see one of them on the 28th, next week. Initially, my GI, wasn't sure whether it was Primary biliary cirrhosis or AIH. However he's now thinking it maybe AIH. May I ask what stage cirrhosis?

@luserm1, I don't mean to confuse you, and I'm not avoiding your question, but, I don't remember ever being given a 'stage'. When prednisone treatment for possible AIH proved non-effective, I was tested and diagnosed with PSC. I was told that the PSC would develop into cirrhosis. My GI monitored me with 3 month labs and checkups until my PSC developed into cirrhosis. In my case, with a progressive disease, that took years to happen. (And I needed a liver/kidney transplant in 2009)
I think there is something about the individual LFT readings over time that helps the doc to direct the treatment as you are being looked at for AIH or PBC.

Here are a few Mayo links that I want to share with you.
Cirrhosis- http://www.mayoclinic.org/diseases-conditions/cirrhosis/home/ovc-20187218

Primary Biliary Cirrhosis- http://www.mayoclinic.org/diseases-conditions/primary-biliary-cirrhosis/basics/definition/con-20029377

Autoimmune Hepatitis- http://www.mayoclinic.org/diseases-conditions/autoimmune-hepatitis/home/ovc-20167530

I do hope that you find some information to help you prepare for your appointment next week. have you prepared a list of questions that you want to ask the doctor? How can we help you with that?
Rosemary

Thank you this information is quite helpful. In my case, my LFT's have also been elevated for years (2004) but I was told i had a fatty liver and diet was the best course of action and no medications were prescribed. This diagnosis of cirrhosis just happened recently in the last 6 months. Though the cirrhosis is severe , my liver is still functioning at this point. However, its imperative to find out what has and is causing the cirrhosis. That's where I am at right now. Again, thank you for the information and the links. After I research I may have some questions. God bless

I am diagnosed AIH.I wait for a liver transplant from the Nebraska Medical Hospital in Omaha.Nebraska.Dont have to tell you how rough this is.Its been about 3years I lived with.I know just about every test that could be given.Its so wonderful this site is here.I wanted to know after 3liver biopsys and living on Ritalin predisone and lactolose.I was told there was not very much people like me.Thank you for the site and is there someone who takes something similar ?I meant to write Rifaxin.