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GPA granulomatosis with polyangiitis

Autoimmune Diseases | Last Active: Mar 18, 2022 | Replies (44)

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@annao175

Hello!

I was diagnosed with GPA a year ago and I found this online support group: https://www.wegeners-granulomatosis.com/forum/. There are members the same age as your son. There are also local support groups affiliated with the Vasculitis Foundation either currently in your area or you could start one. I have found both of these to be tremendously helpful as I navigate my “new normal.”

Anna

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Replies to "Hello! I was diagnosed with GPA a year ago and I found this online support group:..."

Hello @annao175, I see that are a new poster but have been a member for awhile and I would like welcome you to Connect. Thank you for sharing the link and that it has helped you navigate your new normal.

Are you able to share a little more how you've been helped? I'm sure it would help other members here on Connect.

John

Thank you so much for your help. Can I ask what medications you are on?