Connect← Return to What acceptable level of platelets do you shoot for on HU?
Discussion
What acceptable level of platelets do you shoot for on HU?
Blood Cancers & Disorders | Last Active: Oct 6 10:05am | Replies (77)Comment receiving replies
I’m 74 and taking HU 5 days a week. My platelets have been under 500 and stable for the past several months. Recently went up to 649 so my Dr. increased HU from every other day to 5 days/week. I’m hoping this brings me under 500 again and I hope to plateau there.
I don’t know if my symptoms are from HU or ET, but I have almost constant lower leg pain in my bones and occasional toe jabs.I want to keep my dose of HU as low as I can. I also have had a complete thyroidectomy, so I feel like I’m functioning on pills day and night. Levo in the morning and HU at night. My hope is to control platelets without another increase in HU. It’s a balancing game! I’m wondering if the leg pain ever leaves? Anyone else feel like me—constant lower leg pain and frequent toe jabs? I wake up exhausted from leg pain!
Replies to "I’m 74 and taking HU 5 days a week. My platelets have been under 500 and..."
@mumblipeg I am now on 100 mcg Besremi and 500 every other day Hu. No leg pain or other issues except occasional headaches and digestive issues.
Connect
@mumblipeg Yea! I wear old lady support socks and it helps! My toes will cramp and freeze up any time I flex them in any direction, annoying! My doctor says platelets under 600 is acceptable if I haven’t had any issues or clots. I stick around 400 They jump around and I take 500 mg six days a week.I have PV JAK2 and just turned 60, female. It ain’t easy. I get a lot of tooth pain from the meds but I just deal as the other meds have many more side effects and are extremely expensive.