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suska (@suska)

GPA granulomatosis with polyangiitis

Autoimmune Diseases | Last Active: Mar 18, 2022 | Replies (44)

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Sounds overwhelming. My RA Dr either comes up with a solid diagnosis or I will find another Dr. She stated I have RA but voice trails off as if she is looking for something else. They are following my blood work for Multiple mylona. I am exhausted all the time.if I do get my all my energy up for something special I am totally wiped out after a couple of hrs. I have to look up your diagnosis. I am not looking for another disease. I am sure one of mine will get me soon enough.

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Replies to "Sounds overwhelming. My RA Dr either comes up with a solid diagnosis or I will find..."

I understand your weariness. Autoimmune diseases like this (and I believe we are talking about the same thing) are malicious. Question: are your kidneys involved? The term granulomatosis implies that they are. If so your exhaustion could be a result of a low red blood cell count. Oddly although red blood is generated in the bone marrow, it is the kidneys that control the production. When my condition was active all I wanted todo was sleep. A transfusion and some injections of Procrit were required until my kidneys recovered enough to do their job. My doctors needed a kidney biopsy along with the previously mentioned ANCA values to determine my specific autoimmune condition. Bottom line: the response to all these conditions seems to be the same, you take some drugs that slow the reproduction of the fastest reproducing cells, those being the immune system cells (leukocytes?). That’s why the drugs they use are, or are closely related to anti-cancer drugs (another fast reproducing cell). Methotrexate I believe is also used to treat cancer and is very possible. I’m not questioning your RA doctors diagnosis or treatment. I just saying what I’ve learned.