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GPA granulomatosis with polyangiitis

Autoimmune Diseases | Last Active: Mar 18, 2022 | Replies (44)

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@johnbishop

Hi @jjtaylor95 -- Welcome to Connect. I don't have GPA or meningitis. I'm hoping a member with similar health experiences will share their experiences with you. I did a search and found a few links that may provide some helpful information until someone else responds to your question.

Merck Manual - Granulomatosis with Polyangiitis
-- https://www.merckmanuals.com/home/bone,-joint,-and-muscle-disorders/vasculitic-disorders/granulomatosis-with-polyangiitis

NIH - Central nervous system involvement of granulomatosis with polyangiitis: clinical-radiological presentation distinguishes different outcomes.
-- https://www.ncbi.nlm.nih.gov/pubmed/25187644

FDA - Finding and Learning about Side Effects (adverse reactions)
-- https://www.fda.gov/drugs/resourcesforyou/consumers/ucm196029.htm

@jjtaylor95 have you asked your doctor about the immunosuppressants that you are on? Just wondering if there may be a better substitute.

John

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Replies to "Hi @jjtaylor95 -- Welcome to Connect. I don't have GPA or meningitis. I'm hoping a member..."

@johnbishop I did ask, I am being treat by Mayo Clinic in AZ. They are not comfortable with taking me off of immunosuppressants yet (azathioprine) I take 150 mg daily along with 1 mg of prednisone (soon to be stopped) for GPA. Then for fungal meningitis I take fluconazole 800 mg daily and the side effects of that medication is killing me so I wanted to see if anyone else on here takes that as well. I had a lot of complications with the meningitis which has me on 2-3 other pills as well