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GPA granulomatosis with polyangiitis

Autoimmune Diseases | Last Active: Mar 18, 2022 | Replies (44)
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@mikedurham34

Good Afternoon! I was diagnosed with Wegener's 3 years ago. We pushed into remission with Citoxin and Prednisone. It has flared up again, like last time, with-in Sinus, Kidney's, and Lungs. Just finished Ritoxin without the results expected. We're waiting 6-8 weeks to see if there is improvement. I'm currently dealing with multiple Dr's focused on Lungs, Kidney's, and Sinus. My primary Dr. mentioned that I should reach out to a Specialist who deals mainly or primarily with Wegener's Patients. Is there any recommendation? Thank you!!

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Replies to "Good Afternoon! I was diagnosed with Wegener's 3 years ago. We pushed into remission with Citoxin..."
Kanaaz Pereira, Connect Moderator | @kanaazpereira | Feb 9, 2018

Hello @mikedurham34,

You may notice that I moved your discussion and combined it with this existing discussion on granulomatosis with polyangiitis, (formerly called Wegener’s granulomatosis). I did this as I thought it would be beneficial for you to be introduced to members who have discussed much of what you are experiencing.
If you are replying by email, I suggest clicking on VIEW & REPLY so that you can read through some of the earlier messages and meet some of our other members talking about their or their or their loved ones' experiences.

I also thought you may wish to explore these two studies or clinical trials (open) at Mayo Clinic:
– http://www.mayo.edu/research/clinical-trials/cls-20343591
– http://www.mayo.edu/research/clinical-trials/cls-20315026

@mikedurham34, while you are waiting to see if there's been any improvement with Rituxan, may I ask how you are coping? Do you have significant side effects?

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