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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: Nov 1 6:42pm | Replies (768)Comment receiving replies
@jville42
May I ask why you won't take HU? I am on 500mg daily and I am struggling with the side effects. My bone marrow biopsy confirmed ET with another mutation and concern for MPN/MDS overlap. Have no idea what that could be and have an appt on 9/28 in MKE with another oncologist. I am a high risk 77 yo and until this diagnosis I was extremely active...and now daily life is a real struggle. I also an a caretaker in my home for my former husband with Parkinson's. Sorry ramble however really curious why you won't take HU especially since these side effects are greatly affecting my daily life, thanks so much for reading.
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@pps26 I am so very sorry about your current situation. I could not imagine care taking of a human who is very sick. I can barely keep up with the needs of my old greyhound. I am almost 80 and am on 500mg of Hu five days per week. As I have said on here countless times, it is difficult to determine what-is-causing-what at this age. I am tired but also old. So I listen to my body. I get up in the morning 7-8ish, do some work, and by 1pm, am ready for a nap, which i take every day, then I get up and go again, till bedtime 11ish. Tired is the only side effect I can pin on Hu, and perhaps, Id be tired any way.