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DiscussionNewly diagnosed obstructive HCM: seeking advice and reassurance
Hypertrophic Cardiomyopathy (HCM) | Last Active: Oct 11 12:22pm | Replies (46)Comment receiving replies
Replies to "I am also in my 50's. I experienced some concerns in my late 30's, but I..."
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@thoma175 I'm 80 now. I was diagnosed accidentally at 65. I had a septal myectomy at Mayo 15 years ago. There's been serious improvements since then. Now they fix the mitral valve while they're in there. I wish they had that option back then. But, luckily, they can fix the mitral valve noninvasively now. I'm doing fine. I have a good quality of life. I, too, had some less than satisfactory experiences with cardiologists. So, in my opinion, that's a very critical problem that has to be fixed. I've had unexpected retirements of great cardios, was on the hunt again, and am in good shape again today. So, for those fearing a shorter lifespan because of HOCM or HCM, I'm living proof that being your own advocate and maintaining quality medical care can result in longevity and good quality of life. Stay informed. I used to feel afraid about its impact on my life. Not anymore.