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I am also in my 50's. I experienced some concerns in my late 30's, but I was diagnosed with a murmur and MVP. I was diagnosed about 8 years ago with HOCM. No one really clarified much with me, and camzyos was still really new. I moved to another state for a job, and I did not care for my cardiologist. I finally got one that I trust about 2 years ago. I started on camzyos in April. I had an ICD implanted in May. The results are a small improvement, but not nearly what they should be. I am scheduled at Mayo for a septal myectomy in November. The anxiety is real, and it is okay for you to spend time processing it. I think for some people it might be helpful to process this with a counselor that works with people with chronic illnesses or maybe a clergy person...
I do think it is normal to have these feelings. It is a lot to deal with. Be kind to yourself, and do the things that bring you joy. Don't let the anxiety steal all your living. You have a lot of that to do! Praying prayers of peace for you.

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Replies to "I am also in my 50's. I experienced some concerns in my late 30's, but I..."

@thoma175 I'm 80 now. I was diagnosed accidentally at 65. I had a septal myectomy at Mayo 15 years ago. There's been serious improvements since then. Now they fix the mitral valve while they're in there. I wish they had that option back then. But, luckily, they can fix the mitral valve noninvasively now. I'm doing fine. I have a good quality of life. I, too, had some less than satisfactory experiences with cardiologists. So, in my opinion, that's a very critical problem that has to be fixed. I've had unexpected retirements of great cardios, was on the hunt again, and am in good shape again today. So, for those fearing a shorter lifespan because of HOCM or HCM, I'm living proof that being your own advocate and maintaining quality medical care can result in longevity and good quality of life. Stay informed. I used to feel afraid about its impact on my life. Not anymore.