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Anyone taking obinutuzumab + Calquence (acalabrutinib) and venetoclax?
Blood Cancers & Disorders | Last Active: Sep 20 2:24pm | Replies (7)Comment receiving replies
Hello, my CLL was treated with Obinutuzumab infusions and Venclexta in I completed the 6 months of Obinutuzumab and had to stop after 7 months of Venclexta due to severe pulmonary issues. Trips to Mayo and NJH determined that I had Bronchiectasis and CFTR (Cystic Fibrosis related disease). My immune system was wiped out from the CLL treatment and I am now on weekly infusions of Hizentra (SCIG) for my immune system. The good news is there is no sign of the CLL as of now (treatment began in August 2024).
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@gails53 I’m sure it’s a relief to know you have no trace of CLL. It’s a relief to me! Your story is really educational for me. Thank You. I hope your next therapies cure your new diagnosis. Prayers from me.
Did you have CLL symptoms when you started Obinutuzumab infusions and Venclexta ?
Doctor 1 intended the same Obinutuzumab infusions and Venclexta for my next therapy. Doc2 felt my numbers and my no CLL symptoms is not where DOC2 starts any therapy.
My being on Calquence 1 month with severe side effects then Zanubrutinib with the same side effects ? stopping left my blood numbers a mess. I am reluctant to start another therapy and doc2 is as well. For me ? The side effects were 1. painful and 2. Throwing thousands of dollars of medicine in the garbage if my body can’t tolerate it.