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DiscussionAnyone have success with treatment for vaginal Lichen Sclerosus?
Autoimmune Diseases | Last Active: Sep 30 10:12am | Replies (218)Comment receiving replies
Replies to "I have been diagnosed with genital LS for a year. It is painful and itchy. I..."
The best relief for me has been PURE EMU OIL, also fractionated Coconut Oil
@elalios - Just back from my Gynecologic Oncologist 3-month checkup for the LS that became VIN III (Vulvar IntraEpithelial Neoplasia, Grade 3 precancerous) about 2 years ago now, and because of which I have undergone vulvar laser ablation as the first in (so far) a series of 3 approaches to removing the lesions that have developed in these past 2 years.
Without going into more detail this time (I think I've posted some of the details of these procedures in the past 2 years here on the Mayo Clinic Forum), I am back to the maintenance of my condition with Clobetasol propionate 0.01%. It is a steroid, which calms the itchiness and more of this condition. Before this VIN III was discovered/diagnosed I was using the Clobetasol (aka "Temovate") a few times a week.
Due to recent intermittent flare ups my GynOncol today recommended I apply the ointment everyday for 2 weeks, then go back to 3x/week, & to let her know if there are any further flare ups.
Fortunately, unlike some I've read here, the Clobetasol ointment is soothing for me, and there are no side effects that we have seen.
We've scheduled a 4-month follow-up visit next. I hope some of this might help.
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@elalios
I developed genital LS after a kidney infection. What has helped me personally is Eucerin UreaRepair PLUS 10% Urea Lotion, or another brand containing 10% urea, along with using cotton pads and changing them frequently throughout the day.
It took about five days before I started noticing the first improvements.