Connect
← Return to Want to connect with others with Splenic B cell Marginal Zone Lymphoma
Discussion
Want to connect with others with Splenic B cell Marginal Zone Lymphoma
Blood Cancers & Disorders | Last Active: Nov 15 7:18pm | Replies (329)Comment receiving replies
My name is Laurie and I was diagnosed almost 2 years ago with SMZL after routine bloodwork for an ortho procedure. I wasn’t officially diagnosed until after a bone marrow biopsy. I am extremely lucky to have been diagnosed early, and quarterly bloodwork find me remaining pretty stable. I am 64 years old and fairly active.
Has anyone seen or heard about healthy lifestyle models for SMZL patients? There isn’t a lot of research because we’re so rare, but I’d like to be as proactive as possible and find resources on diet, exercise, and mindfulness as it pertains to the immune system. So happy to have found a current group!
Replies to "My name is Laurie and I was diagnosed almost 2 years ago with SMZL after routine..."
Hi Laurie, I just saw this post - I hope you are still doing well!
I just went thru a battery of tests at UMN cancer clinic over the last 2 months and it now looks like I have SMZL. I have had PET scans with contrast, a bone marrow biopsy, and plenty of blood tests. They are just waiting on the lymph node biopsy to narrow it down further.
I'm 64 and thought I was in good heath until my WBC showed up above 30k during a routine physical last Nov. Really not much in the way of incapacitating symptoms so far.
Due to my high WBC and low RBC counts, my doc thinks that I might need to due a round of rituximab within 6 months if my counts get worse.
Would love to know what you have learned in the last 4 yrs!
Paul
Connect
Laurie,
I am wondering if you have found information about how to be proactive with SMZL? I am 58 and recently diagnosed. Waiting for bone marrow biopsy. Thanks. Renee