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REDO SEPTICAL MYECTOMY

Hypertrophic Cardiomyopathy (HCM) | Last Active: 3 days ago | Replies (8)

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It will be five weeks tomorrow since I had my REDO Septical Myectomy and I thought I would share an update.
It was a struggle but I was determined I was not going to live my life on oxygen, and I did it I am off of it.
But the struggle still goes on I believe they got all of the obstruction.
I am having alot of problems breathing like something is pushing on my lungs, and out of breath and dizzy.
I am still so Fatiqued and have no energy but still walking despite how I feel. My heart rate stays high my blood pressure is high, swollen feet, that last 24 hours with no relief.
The second time around is definitely harder than the first, but I am still working on trying to push on.
But in my case I've decided for me I am done with anymore medical procedures and appointments.
I will always believe that if you are going to have a Septical Myectomy please go to a Hospital Of Excellence that has performed 1.000 of Septical Myectomy not just 15 or 20 make calls do your research its your life and your journey. I don't wish what happened to me on anyone, unfortunately for me it was a matter of what hospital would take my insurance, and it turned out to be the wrong choice.

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Replies to "It will be five weeks tomorrow since I had my REDO Septical Myectomy and I thought..."

@holly1275 Thank you for posting an update, I am so, so sorry that your recovery is long and uncomfortable. ((HUG)) I hope that the fatigue, swelling and BP all stabilize; I am glad to read that you are walking, a good thing.

You pointed out receiving care at a COE (Center of Excellence) should be a top priority in undertaking a septal myectomy - or any HCM related journey. YES! Anyone else reading this should highlight that fact, yet the insurance rules make medical care very uneven. If one contacts the Hypertrophic Cardiomyopathy Association 4hcm.org it is quite possible that an intake session with them would come up with matches between your insurance and a COE, maybe even more than one.

Do post about your progress. What does your doctor say about you water retention, fatigue and high BP?