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DiscussionWhat was your platelet count before starting Hydroxyurea?
Blood Cancers & Disorders | Last Active: Sep 16 9:34am | Replies (23)Comment receiving replies
Replies to "Thank you (Jean) m@nohrt4me for mentioning your experience with erytrhomelalgia. I am sorry to hear about..."
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@gajokos Erythromelalgia has been less severe since I started HU, but it might not shake out that way for others, and I don't want to fight about it. I wish that MPN patients were not so polarized about it. We're all doing our best dealing with an ailment that is poorly understood and inadequately explained.
I appreciate the tip about inverted yoga poses! I do daily yoga and qigong (old lady version!) for my scoliosis and will add a legs-up position to see if that helps. I am going in for open heart surgery Thursday to fix a congenital heart valve problem, and hope I can get back to exercising asap. Even a week off and I start to get frozen up.