← Return to SMM: What's a reasonable monitoring schedule?

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Profile picture for Patty, Volunteer Mentor @pmm

@kansasjayhawk, I’m sitting at MGUS, with my “numbers” stable and low. I was diagnosed five years ago and did quarterly appointments for the first two years. I’m now seeing my oncologist every 6 months. My appointments do seem a little redundant.
Yay! Whew! Glad to see ya, doc, see you at Christmas time.
Since my MGUS diagnosis was purely incidental to an injury, I had no idea that pesky paraprotein was hanging out in my body. So I’m good going in twice a year for a check in. It’s painless…well except that my hematologist/oncologist is fairly stuffy and humorless. I view it as preventative maintenance. If my MGUS ramps up to Smoldering or MM, I want to know and want to be able to take advantage of all the good stuff that is coming out of research in the way of treatment.
That’s my plan, anyway. I hope that a discussion with your provider will offer an option that works for you.
Do you get anxious related to your appointments if I can ask?
Patty

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Replies to "@kansasjayhawk, I’m sitting at MGUS, with my “numbers” stable and low. I was diagnosed five years..."

@pmm I don't mind the labwork per se, but driving an hour for a 10 minute appointment to go over numbers I can see online doesn't seem like a good use of my time. I just think if he's going to use 20 2 20 to call this low risk it can be treated as low risk.