1. < Neuroendocrine Tumors (NETs)
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Any one with Neuroendocrine tumors getting the shot once a month?

Posted by amygirl @amygirl, Dec 23, 2024

I have heard there is side effects to the once a month shot( unsure of the name) what has any one experienced?

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

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Teresa, Volunteer Mentor | @hopeful33250 | Sep 13 8:49am
In reply to @elainekb4 "I was 39 when the first tumor was discovered in between my small and large intestine...." + (show)
Profile picture for elainekb4 @elainekb4

I was 39 when the first tumor was discovered in between my small and large intestine. Surgery removed it. 10 years later a couple showed up in my breast. Since then in the past 16 years all was pretty quiet then I developed a tumor in my back, my leg, and now activity is showing something in a couple of bones. It is hard to find a neuroendocrine specialist. But do find one as they are more aware of this type of cancer. I am now 66 and still feel good. And still learning. You have this.❤️ Just make sure you keep informed and if you can, go to Mayo if you ever want a second opinion. They are amazing!

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Hello @elainekb4

I am glad that you found Mayo Connect. It is difficult to face this cancer alone. I joined Mayo Connect when I was facing my third NET surgery, and I have appreciated the support of other members. Are you currently being seen at Mayo Clinic?

I would like to introduce you to @tomrennie, who also has had some NETs in the bone. Perhaps he can share more with you about this.

What symptoms are most bothersome right now?

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hollywood817 | @hollywood817 | 4 hours ago

I receive an injection of Lanreotide every 21 days. I’ve had 55 injections and the only side effect is fatigue and occasionally a small lump at the injection site which can take weeks to dissipate. Best of luck with your journey.
Tom

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