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What was your platelet count before starting Hydroxyurea?
Blood Cancers & Disorders | Last Active: Sep 16 9:34am | Replies (23)Comment receiving replies
79 years old male here. JAK2, ASXL1, ZRSR2, TET2. Prefibrotic Myelofibrosis.
Diagnosed in 7/2025 with platelets at 1.4 million. Took 2,000 Hydroxy a day for 5 months and now maintain 600,000 platelets with 1,000 6 days a week and 1,500 1 day a week.
Fatigued beyond belief.
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@jtcat7
I'm sure there are others, but you are the first one I have seen here with initial platelet count higher than mine at diagnosis. Mine was 1.250,000. Doctor put me on HU next day (was in Venezuela and my husband had to drive to a big city to get the HU back in 2015. Late things got much worse as for finding medications. We had to come back to the USA.
During these past years they have crept back up to 900,000 but I am pretty safe now at 450,000 to 500,000.