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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: 4 hours ago | Replies (728)Comment receiving replies
Headaches, racing heart, dizziness and leg tingling may ALL be ET symptoms.
Why? Our heart struggles to pump our platelet-heavy blood throughout our bodies, especially to our legs and feet. And our thick blood stresses the tiny vessels in our heads, resulting in blinding headaches.
ET also exhausts us by diverting so much energy to platelet overproduction.
But have hope! Get your platelet count down, and you'll get your life back.
Being diagnosed is the first step towards a better life. Your oncologist will help you take the next steps forward.
With your partner's Parkinson's -- you are dealing with so much, pps26. Please, please remember to take care of yourself too.
OXOXOXOXO
Replies to "@pps26 Headaches, racing heart, dizziness and leg tingling may ALL be ET symptoms. Why? Our heart..."
@janemc
After reading the warnings on HU -Hydroxyurea 500mg - I am not sure I can take this! Warnings say it can cause cancer?
My sister had rectal cancer and her chemo pills ended her life after one week. Her organs started to shut down.
Life sure can be a roller coaster rise. One minute I'm super active and now the daily exhaustion is just short of crippling me. Sorry... to vent like this!
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@janemc
Thanks so much for your reply. Went to oncologist appt yesterday to confirm diagnosis and it gets worse. He confirmed ET as well as MPN/MDS overlap.
I am 77 yo and who was so active prior and the wind has been taken out of my sails. My legs bother me a lot with tingling and my heart races daily. Platelets at 600. He prescribed HU (500mg) however haven't started yet. My sister had rectal cancer and lasted one week on chemo pills and her organs shut down and she passed.
Live in Green Bay area and oncologist has referred me to a Froedert in MKE for second opinion. Feeling pretty frazzled right about now... thanks again!