1. < Neuroendocrine Tumors (NETs)
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I recently had surgery to remove NET in small intestine

Posted by hans051275 @hans051275, Feb 12, 2025

They did a rt hemicolectomy and small bowel resection. They also did a wedge resection of my liver. They removed all of the tumor. Liver pathology came back clear. What concerns me is 7 out of 20 lymph nodes came back positive and they are telling me there is no treatment. They said high reoccurence and to just do scans and lab work every 6 months. Is this true no treatment just wait for reoccurence???
--Well-differentiated neuroendocrine tumor, grade 2.Tumor is 1.8 cm in greatest dimension.
Lymphvascular invasion is identified.
Perineural invasion is identified.
Number of lymph nodes examined: 20.
Number of lymph nodes involved: 7.
Maximum size of metastasis (glass slide measurement): 4 mm

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Turkey, Volunteer Mentor | @tomrennie | 3 days ago
In reply to @thunderdad5 "Type in neoindicrine cancer in the search bar." + (show)
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Type in neoindicrine cancer in the search bar.

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@thunderdad5 I can't find in the article where it says that Sloan Kettering NYC is number 2 in the country for treating NETs. Did I miss something?

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Turkey, Volunteer Mentor | @tomrennie | 3 days ago
In reply to @blackhluk "@tomrennie Hi Tom, yes I have in liver and intestine" + (show)
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@tomrennie Hi Tom, yes I have in liver and intestine

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@blackhluk Sorry to hear that. How long have you been dealing with NETs? Where is your primary tumor?

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tara2026 | @tara2026 | 1 day ago
In reply to @blackhluk "I hope you are doing well now, lets us know your update" + (show)
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I hope you are doing well now, lets us know your update

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@blackhluk Thank you for reaching out. Doing better each day. Swelling is improving - my diet I’m still figuring out. Had my first follow up appointments to discuss adrenal gland nodules as well as thyroid nodules. 1st follow up post surgery CT and bloodwork is in a few weeks along with meeting my medical oncologist. Does anyone have advice for question to ask the medical oncologist?

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tara2026 | @tara2026 | 1 day ago
In reply to @taly "@tara2026 Welcome! I'm pretty new here; diagnosed about 6 wks ago and awaiting surgery on the..." + (show)
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@tara2026 Welcome! I'm pretty new here; diagnosed about 6 wks ago and awaiting surgery on the 30th for a NET of the small intestine. I hope I can keep a positive attitude the way you have!

I imagine you were given instructions at discharge for what to look for and when to call and check in. I've just been hearing if anything seems not to be getting better after discharge, or is getting worse, to contact the clinic. Perhaps your symptoms are just what they told you to expect.

I think it's so helpful to have a care team you trust. I'm glad you do. Let us know how you're doing.

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@taly You’ve got this! The best advice I keep getting from family and friends is to be a turtle in recovery. I’ll be thinking about you and send positive vibes your way!

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