Connect
← Return to Hepatic encephalopathy
Discussion
Comment receiving replies
I hope everyone had a happy new year despite what the year before we went through. I have to count as all join lmade another day. I just came out the hospital on the 27th for psychosis, bipolar but why l was admitted? I notified my doctor at the mayo clinic for my xifaxan. I had ran out. He's the greatest. He called it on December 11th. I was having psychotic symptoms and was admitted on the December 16th. I missed Christmas with my family just because they couldn't see l was having symptoms of HE. So he called in my med for 550mg and on the 27th the neurologist calls in 250mg of the same meds. I went to the pharmacy yesterday to pickup my med but is was closed for the new year. So today l called the pharmacy to pickup my meds and he tells me the one from the 11th is ready but the insurance for the one on the 27th the insurance doesn't want to fill. Ok l understand that exactly but because of the doctor negilance l missed Christmas with my family. And l lost my mother last year also. But to keep my sanity l have to count all joy!!! Because Jesus was the reason for the season not me. So tomorrow l go to see the psychiatrist and l pray God will put a seal around my mouth just like he did abraham before sarah had a first baby at 90. Just Pray for me. And l am so blessed today my adopted grandson from church wants to spend the day with me on Friday. He has autism but he's such a blessing to me because he just loves me and waits for me to come to church. That gives me joy and l know each pain l suffer is all worth it
Replies to "I hope everyone had a happy new year despite what the year before we went through...."
@techi. I’m a little confused. Have you been diagnosed with non-alcoholic cirrhosis, also referred to as NASH cirrhisis from fatty liver? I assume you have if you are having confusion episodes, HE. If so, your family needs to learn about HE and the other symptoms you may have. Someone in your family should accompany you to the doctor to learn about it, or at least speak to your doctor.
I had HE episodes, some minor, some major that put me in the hospital. These started happening before I was diagnosed with NASH cirrhosis. My family was very concerned, the PCP I had when I had my first episode thought I had Alzheimer’s, which a neurologist scoffed at, but because I didn’t have some symptoms that are common with liver problems such as jaundice and out of range AST and ALT numbers, my PCP (a new one, not the one who suggested Alzheimer’s) could not figure out what I had, and sent me to the neurologist. He, after a couple of appointments suggested my problem was my liver and after tests, cirrhosis was finally diagnosed.
Prior to the diagnosis though my family was extremely concerned and had no idea what was wrong. I’m sure your family must also be concerned and if they speak to your doctor maybe that will help them to understand.
I hope your family will learn more so they can help you through this ordeal and understand HE episodes.
JK
Connect
Hello, @techi - I wanted to let you know I've moved your new post on hepatic encephalopathy to this discussion you started previously. @contentandwell @godlygal and @rosemarya may have some thoughts on your feeling that you were having symptoms of hepatic encephalopathy and feeling misunderstood by your care providers.