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DiscussionAnyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: Nov 1 6:42pm | Replies (768)Comment receiving replies
Replies to "@pps26 I was diagnosed with ET in 2023 w/JAK2- numbers are around 600 - I also..."
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@jville42
May I ask why you won't take HU? I am on 500mg daily and I am struggling with the side effects. My bone marrow biopsy confirmed ET with another mutation and concern for MPN/MDS overlap. Have no idea what that could be and have an appt on 9/28 in MKE with another oncologist. I am a high risk 77 yo and until this diagnosis I was extremely active...and now daily life is a real struggle. I also an a caretaker in my home for my former husband with Parkinson's. Sorry ramble however really curious why you won't take HU especially since these side effects are greatly affecting my daily life, thanks so much for reading.