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@pps26
I was diagnosed with ET in 2023 w/JAK2- numbers are around 600 - I also have the CHEK2 gene mutation - and am adopted so no biological history. ET was confirmed with the bone marrow biopsy. I am 56 and continue to maintain an exercise routine and healthy high protien eating. I do have days that I am pretty tired, and have noticed what I could do before takes a little more out of me - but overall I'm living with the cancer and not letting it interfere with my daily life. I do not plan on taking HU - I will enter the higher risk group once I turn 60, but I take it day by day and try to live healthy. For me this cancer is present but I choose to keep it in the background and while being aware of it, not let it run my life. Good luck with your journey!

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Replies to "@pps26 I was diagnosed with ET in 2023 w/JAK2- numbers are around 600 - I also..."

@jville42
May I ask why you won't take HU? I am on 500mg daily and I am struggling with the side effects. My bone marrow biopsy confirmed ET with another mutation and concern for MPN/MDS overlap. Have no idea what that could be and have an appt on 9/28 in MKE with another oncologist. I am a high risk 77 yo and until this diagnosis I was extremely active...and now daily life is a real struggle. I also an a caretaker in my home for my former husband with Parkinson's. Sorry ramble however really curious why you won't take HU especially since these side effects are greatly affecting my daily life, thanks so much for reading.