NET tumor of pancreas (1 cm) diagnosed

Posted by u20967 @u20967, Jul 9, 2025

I am 73 year old diagnosed with a 1 cm NET of pancreas that was found incidentally on a CT scan that was done for another issue. The surgeon I was referred to recommended to just follow up in a year with another CT scan. He said a biopsy may not be able to get anything because of the small size. I am on the fence, should I go ahead with a biopsy or is it a waste of time?
Also, the surgeon said an enucleation couldn't be done? I don't understand that and am going to further question him about this. Has anyone had an enucleation of a small tumor of pancreas? I am afraid the tumor will grow and would like it removed, but I am not willing to have a Whipple at my age. Maybe a biopsy will tell how fast it is growing?

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

Profile picture for Turkey, Volunteer Mentor @tomrennie

@rdebeer See the above reply from @hopeful33250. It list some resources to locate NET specialists. Have you had and luck finding one yet?

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@tomrennie, Turkey, & Hopeful33250, Hi folks, Thanks to all for your comments!
Not yet. I live in Las Cruces, NM and there are no net specialists here. In fact there are only 3 Oncologists here, who I no longer use. I will get the printed forms of my newest biopsy next Monday 09/14 and will then be able to submit to (hopefully) Mayo Clinic in Phoenix which is 400 miles west of me. I hope to be able to get an appointment in early October since I have to pass by there on my way to a long overdue trip to California. I have been seeing an Oncology Surgeon down in El Paso, TX (50 miles south), but he won't do surgery on me since I am 82 years old, and we have agreed for me to find a new NET Oncologist. I hope to have some appointments set up shortly after next Monday. Regards, Rick

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Profile picture for mmedinnus1 @mmedinnus1

@hopeful33250

I live 40 minutes from m a y o Rochester so I will see a consultant there. I also have a friend who is a nurse up in the cities and works with a doctor who specializes in neuroendocrine tumors so he will be my second opinion

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@mmedinnus1, how did the MRI go? How are you doing?

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