I have pelvic dyssenergia. Does anyone else have that?

Posted by ltarashuk @ltarashuk, Apr 15, 2025

Hi,
I have CIC but also have pelvic dyssenergia. Does anyone else have that? I have been to pelvic floor PT but still can’t evacuate completely. Wonder if anyone has any suggestions. Thank you

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Profile picture for ltarashuk @ltarashuk

I had months of PT and my dyssenergia has improved but I still can’t completely empty. I am repeating the anorectol manometry because my current PT thinks my muscles aren’t strong enough to completely evacuate. I take miralax and senna but if I get really constipated which I do and I have to take more senna then I get days of diarrhea. I have been trying to find some help managing my laxatives. I just had a very bad episode of fecal incontinence after a year. I feel discouraged.

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@ltarashuk
I am functionally blind so I don't think my replies always come out as being from me. I had anorectomanometry and baloon explusion. My muscled are definitely not working but after a few months I have movement occasionally but usually it is having to use ther finger. I need BioFeedback but my Dr. and I are still searching. No one wants to do it.

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Profile picture for maggie1942 @maggie1942

@maggie1942
The hemoroids are difficult to control because I am unable to deffecate and using a finger it very irritating. Fodmop diet does not work for me I have worked with diet for over two years. Most fiber is not good and I can eat fermented foods which make me feel better. Sourdough is good. I take Miralas and Sunfiber and also Zenwise Digestive Enzyme. It has made a difference. My stool travels to the rectum but it will not expell from the Anus. I drink 60 to 80 oz of water daily. I wake every 3 to 4 hours in pain. I find the massage technique helpful and usually can go back to sleep. I am 83 so that is another issue. My doc says I look like a picture of health and much younger but with the heart, eye and digestive issues it tells another story. I came from a family of radicals who threaten with firearms so I have no support as all my close friends have passed Luckily I have a partner next door who is a blessing to me although he has cancer and has a tumor wrapped around his rectum. Yet I find joy in each day. Oliver Sacks book he wrote the last year of his life. It gives me joy and hope to read it again and again. With a 7 day period of constant afib I am thankful for each day and for each of you. By the way, I have very little constipation since I know what foods I can eat. Any help you can suggest is appreciated. I am grateful for each one of you.

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@maggie1942 Sounds like you're doing all you can to deal with your situation. Unfortunately, there is no "one size fits all" when it comes to treatment here, right? As my husband is always saying, "Old age is not for sissies!" We're only entering the senior phase of life but we both had parents who lived into their nineties and who did not have an easy time of things. I'm glad you have at least some support. This forum is a good place to exchange information and to learn that one isn't the only one out there dealing with these kinds of things.

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Profile picture for rnewman12 @rnewman12

@maggie1942 Sounds like you're doing all you can to deal with your situation. Unfortunately, there is no "one size fits all" when it comes to treatment here, right? As my husband is always saying, "Old age is not for sissies!" We're only entering the senior phase of life but we both had parents who lived into their nineties and who did not have an easy time of things. I'm glad you have at least some support. This forum is a good place to exchange information and to learn that one isn't the only one out there dealing with these kinds of things.

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@rnewman12 I appreciate your thoughts and help. We are in this together.

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