1. < Osteoporosis & Bone Health
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Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

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gravity3 | @gravity3 | Aug 30 1:40pm

I took evenity for the full year. No noticeable side effects and great gains.

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nermar1 | @nermar1 | Aug 30 2:51pm
In reply to @gravity3 "I took evenity for the full year. No noticeable side effects and great gains." + (show)
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I took evenity for the full year. No noticeable side effects and great gains.

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@gravity3 thanks for the heads up about windy shores. For your treatment, did you take anything before Evenity? Specifically, an anabolic drug. Based on a Dr. Doug video someone shared in this community, I'm wondering whether I should take a pure anabolic first and then Evenity, which is an anabolic + catabolic combination. Curious to see what another person's experience was going this route.

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gravity3 | @gravity3 | Aug 31 1:04am
In reply to @nermar1 "@gravity3 thanks for the heads up about windy shores. For your treatment, did you take anything..." + (show)
Profile picture for nermar1 @nermar1

@gravity3 thanks for the heads up about windy shores. For your treatment, did you take anything before Evenity? Specifically, an anabolic drug. Based on a Dr. Doug video someone shared in this community, I'm wondering whether I should take a pure anabolic first and then Evenity, which is an anabolic + catabolic combination. Curious to see what another person's experience was going this route.

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@nermar1

Yes. Forteo. Mine has been a less than ideal sequencing of these medications. I have been at this awhile and I knew nothing when I started and my various providers were learning too.

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anatomary | @anatomary | Sep 8 11:57am
In reply to @iowagal "Age-- 73 Reason for starting Evenity--I have tried other meds such as Reclast, Tymlos, etc. &..." + (show)
Profile picture for iowagal @iowagal

Age-- 73
Reason for starting Evenity--I have tried other meds such as Reclast, Tymlos, etc. & experienced multiple spontaneous fractures while taking them. My foot is my 23rd fracture. I was referred to an osteogenesis imperfecta specialist who said I did not have O. I. He is the only doctor in the Portland metro area who prescribes Evenity. So, he is handling my case for this year.
Yes, I am in a boot. I don't hold out too much hope though. I fractured my upper arm 1 1/2 years ago and it still hasn't joined - even with an ultrasound bone stimulator.
I am looking forward to my dexascan in March. Hopefully, I will have gained some bone density. On the other medicines, I continued to lose density.

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@iowagal I am a Michigan gal! I wondered how you are doing. I am 65 and to my surprise was diagnosed with severe osteoporosis (-4.8) in my spine and mild in femur (-2,6) . I have recently found out I have a BMP1RA mutation and my endocrinologist thinks I probably have Osteogeneis Imperfecta 13 - despite not having any fractures. Well, I had a fracture of my clavicle in my 20's but apparently that doesn't count... Anyway, I was told the OI 13 mut has little data for treatment. So we don't know what will work with this mutation. I have the choice of Tymlos (builds spine quick but not tested in OI mut population) or Evenity (also not tested but uses a different bone building pathway). I am curious to know if you had any gains?

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carriebeth | @carriebeth | Oct 6 8:49pm
In reply to @arlene7 "@passerby I did....Because I go to an infusion center for injections, it is covered by Medicare..." + (show)
Profile picture for arlene7 @arlene7

@passerby
I did....Because I go to an infusion center for injections, it is covered by Medicare Part B and co-insurance (after a deductible of $257), therefore, my cost is $0.

My honest opinion is that it all depends on each individual's specific situation, medically and financially. My family has a history of heart disease, but fortunately, I have been managing my high cholesterol for years and have tried to maintain a healthy diet, etc. When I decided to take Evenity, I spoke with my cardiologist, who had treated both my parents as well, and he agreed I should take it. Therefore, it made my decision easier. Yes, I was afraid of the side effects; however, I felt I should try. Evenity did help my bones, so it worked for me. Hoping my second go-around with Evenity will be successful as well.

Please let me know if you would like more information.

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@arlene7 Is your insurance covering 2 courses of Evenity? I thought insurance only covers one 12 month course.

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arlene7 | @arlene7 | Oct 6 11:23pm

I am covered by Medicare

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msturcken | @msturcken | Oct 7 9:28am
In reply to @nermar1 "@gravity3 thanks for the heads up about windy shores. For your treatment, did you take anything..." + (show)
Profile picture for nermar1 @nermar1

@gravity3 thanks for the heads up about windy shores. For your treatment, did you take anything before Evenity? Specifically, an anabolic drug. Based on a Dr. Doug video someone shared in this community, I'm wondering whether I should take a pure anabolic first and then Evenity, which is an anabolic + catabolic combination. Curious to see what another person's experience was going this route.

Jump to this post

@nermar1 I am currently on evenity with two two month holidays due to invasive dental work. Because my teeth are so bad as a result of another medication I am on I will probably need more dental work. I am thinking it woukd be safer for me to have two years of reclast vs a lifetime of prolia because of my teeth

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