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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: 3 hours ago | Replies (696)Comment receiving replies
@cec2 No neuropathy. My red blood cell count is slightly low and white blood cell count is normal. My Heme/Onc is not concerned at all and says my blood counts indicate that I am doing very well on HU. He also regularly reviews the portions of the blood tests that indicate kidney and liver function and says both are fine.
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@debhammel
Thanks and that's encouraging to hear!
I was having tingling so they told me to leave the HU off on weekends. Platelets were in the low 200s. My red count is just slightly below normal and white count is at the bottom of normal. This concerned me a little but PA said the numbers are very good. I'm hoping my platelets behave with the reduced HU.