← Return to This is the $64,000 question. . .WHY NO MED FOR NEUROPATHY?

Discussion
highdesertdweller avatar

This is the $64,000 question. . .WHY NO MED FOR NEUROPATHY?

Neuropathy | Last Active: 3 hours ago | Replies (29)
Comment receiving replies
Profile picture for highdesertdweller @highdesertdweller

Thanks, all. Thanks, Megidio for the update! I did sign up for their newsletter, et al. so I absolutely WILL travel to Montana if they can get it through there. I will call and encourage Mr. Kim. He makes so many excellent points about our medical process in that video with Western Neuropathy. Amazing there are not a dozen companies working on this. Just from the financial standpoint it would be huge for the companies. I think SO MANY small companies have trouble getting the FDA to approve meds, right??? In the process of making something "safe", how much suffering goes on before approval, and nothing is absolutely safe.

Jump to this post

Replies to "Thanks, all. Thanks, Megidio for the update! I did sign up for their newsletter, et al...."
megidigo | @megidigo | 2 days ago

@highdesertdweller

There is a Korean company that was developing a drug for diabetic peripheral neuropathy but I think failed phase 3 trials.

I found this link that mentions they are studying it for Charcot Marie Tooth disease which is a peripheral neuropathy.
https://charcot-marie-toothnews.com/news/gene-therapy-engensis-shows-early-sign-benefitt-cmt1a/
Then this link says they failed phase 3:
https://www.koreabiomed.com/news/articleViewAmp.html
The companies website: https://www.helixmith.com/eng/

When I was first diagnosed I asked so what do I do after being told there is nothing we can do (guess I didnt want to believe it. I was told to look for clinical trials.

I look for them every now and then and know there is one for Walkasins currently and then the Montana program possibly coming up. Now the issue for me would be getting to these.

I have tried contacting one of the researchers from Winsantor at his university to no avail. Wasnt expecting a response but got nothing left to lose and figured what would it hurt…..

Im gladly willing to be a human pin cushion for any drug trials if they were to come up if my circumstances were to allow.

VIEW AND REPLY