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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: 11 hours ago | Replies (717)Comment receiving replies
ET with Jak2 mutation diagnosed in 2018 but clearly was walking around with it for quite a few years before diagnosis.
Have a HU dosage question.
I am reading that if you take 2 HU a day 500mg each.
Taking 1 in the a.m.
And 1 in the pm seems to keep numbers stable longer.
Has anyone else been given this suggestion by their O/ H?
Replies to "ET with Jak2 mutation diagnosed in 2018 but clearly was walking around with it for quite..."
@mjfp49 My O/H told me to take HU twice a day. He didn't specify when, and I take one 500 mg capsule with breakfast and one with dinner. Seems to work for me - I was diagnosed in October, 2023 and HU brought my platelets down from 792 to right around 200 very quickly - and I've been stable since then.
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Hi. My wife, Becky, takes two 500mg, 2x per week and one every other day. Her oncologist has never suggested anything other than taking the two. He never mentioned splitting the two up.
Steve