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Anyone waiting for liver transplant and diagnosed with liver cancer?
Transplants | Last Active: Sep 18 2:22pm | Replies (58)Comment receiving replies
@tomrennie @colleenyoung just wanted to update. My husbands cancer came back in August. His AFP number jumped back into the 600 range. He is still listed and was just bumped up to being “on call” this last Friday. They added the exception points to his MELD number. He is having the SBRT radiation next week and then hopefully the new liver in the coming months. It is so hard to do the waiting as you all know but everything Mayo told us from day 1 has been almost spot on. Any one with any suggestions on what we do now that we are on call or how long it took you to get that new liver would be appreciated. Thank you!
Replies to "@tomrennie @colleenyoung just wanted to update. My husbands cancer came back in August. His AFP number..."
@gigi32 It seems like the transplant is moving forward. There are others here like @craigcraig that can also help you prepare for it through their experiences. He gave some great advice. How are you folks feeling about everything?
@gigi32, I appreciate the update. How is radiation treatment going?
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@gigi32 It sounds like it could be any time ? Hopefully not too long. Have your go bags packed. Your transpiration (getting there in 24 hrs) and lodging figured out. My case was very similar and Mayo said "months" but they found a liver for me in 18 days . Have heard others getting them sooner than expected. It could happen to you. Very best of luck. Prayers up.