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Chronic Myeloid Leukemia (CML)

Blood Cancers & Disorders | Last Active: Aug 10, 2023 | Replies (33)

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@living

So I had a follow up appointment yesterday. My number BCR went up slightly which is normal from what I was told. I am having issues with edema effecting my face and legs. So after some more blood work and an EKG the plan is to switch to Nilotinib if the EKG is good. Nilotinib seems to have a long list of side effects also and requires 2 doses a day. I guess we’ll see how it goes in a couple months.

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Replies to "So I had a follow up appointment yesterday. My number BCR went up slightly which is..."

@living, @mcullen123 may be able to share their experience with Tasigna (nilotinib).

What suggestions did your symptom management nurse have for dealing with edema? Does raising your legs or compression stockings help?