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@gratia I agree totally, about the hardest part is the unknowable future of the disease. What I'm up against too, and frantic over what to do. I have to find someplace else to live, and that frightens me, and I'm not sure why. Look into those nature shots you take like I'm doing right now and I see a field of "hope" in all of this. Your sister is there to help you. Thank God. And you are now looking for a backup caregiver. Thank God. My takeaway, and from someone who posted recently, told me, take what you're dealing with, in small steps, and just chip away. So for me, it's sell my house, clear out my stuff, find another place to live so I can get out of this rental, and get my husband situated in some normal. Small steps, where we conquer one thing at a time. My mantra: Courage to make change, Clarity to know what to do, and God's light helping lead the way. Best, Karla
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@kjc48
Karla, you have got this! You have the mindset and your faith to carry you through. I’m just about at the end of an extremely challenging task that , like you, had me terrified. I really wanted to crawl into bed and just sleep forever. Since that was not a realistic option, I leaned on my faith, prayed for help, and came up with a plan…sort of. I won’t bore you with the details, but similar to you, I had a house to empty, repair, and sell…while living in another state…requiring flights, car service, and scheduling family to stay with my husband, during my absence. Looking back, I can honestly say I don’t know how I would have managed it, without my faith. I prayed for help and did I ever receive it!!! Sometimes small things that would make my day brighter, but also big issues were suddenly resolved. It was quite amazing and comforting. By breaking an overwhelming task into small segments, and tackling one at a time,I was able to accomplish the impossible, and you will too!
May God bless you on your journey.