Vacation Over - No Bueno ☹️

Posted by mjp0512 @mjp0512, Sep 1 10:49am

Well, all good things must come to an end. My medical vacation for the month of August ended this morning with a visit to the lab.

PSA = 19.79 up from 3.45 on 7/2
ALP = 227 up from 125 on 7/2.

A visit to the infusion center may be in my short-term future. New Genito-urinary oncologist visit a week from today. I'll try to talk him into another PSMA PET so we can see what we're shooting at. Last one was 4/30 so I don't know if they'll do one that soon. We shall see. Here we go again.

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dpayton | @dpayton | Sep 1 10:53am

Sorry to hear about those numbers my friend. I can only add that I had 2 PSMA scans done 3 months apart. They normally don't do them that closely together but I think it depends on getting a new picture before treatment to be sure they know exactly what they're dealing with. Good luck brother. ❤️👍

tattodice | @tattodice | Sep 1 10:54am

Will pray for you today 🙏🏽 You certainly have the right attitude. Lesson here.

Jeff Marchi | @jeffmarc | Sep 1 11:21am

That big jump in PSA should definitely get you a PSMA PET scan. Nothing else can really find what’s going on in your body.

Maybe they can find something and zap it with radiation and you will be back on vacation.

xahnegrey40 | @xahnegrey40 | Sep 1 11:46am

well get all the facts and as jeff suggested, a PET scan. and it may be one or two small areas which can be suppressed with radiation and you can continue your vacation. We all ride this roller coaster together and hope your down time is short lived and you are back up...maintain your cool and report back with findings and know we all wish you good luck !

mjp0512 | @mjp0512 | Sep 3 5:34pm

Thanks guys!

My guess at the new GUO visit Tuesday...
1) Repeat PSA to confirm (that's a big jump in 2 months) but that along with the ALP jump makes me think it's a real number. And since I'm not yellow, it's probably bone somewhere.
2) PSMA PET to determine whether targeted or systemic treatment (or both) is warranted.
3) Hurry up and wait again. 😁🤣😁

johndavis60 | @johndavis60 | Sep 3 6:29pm

I hope everything goes ok. 🙂

Too-Many | @toomany | Sep 3 7:06pm

Greetings!

I'm in somewhat the same boat ('localized' recurrence per PSMA-PET scan), following "triple-play" treatment (ADT, brachytherapy and beam radiation), eight-years ago, and my PSA has jumped from 4.5 to 13.4, over the last eight months. However, that jump is not quite as dramatic as yours, and clearly, things other than cancer itself can cause such bumps, so I strongly concur with others here to insist on another PSMA-PET if you possibly can. Either way, I would think your oncologist would be recommending ADT, post-haste.