Connect← Return to Why Camzyos instead of surgery?
Discussion
Why Camzyos instead of surgery?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 10 4:25pm | Replies (54)Comment receiving replies
@jules21 thanks and no at the time I was 57 years old and they and my insurance made camzyos very affordable $10.00 per month.
Camzyos helped in getting me stronger but it had its limitations, i ended up having septal myectomy in June of 2025, the doctors say the heart is good with no obstruction now but i have had issues with my sternum not fusing, they performed a sternal wire removal and added plates in dec 2025 and the sternum still has not fully fused so another surgery to reconstruct the sternum is being done sep 16 2026
My heart condition feels so much better i no longer get light headed standing up or walking stairs or hills! Im just dealing with chronic pain from the sternum not healing!
Its bearable it just prevents me from doing things i like to do riding my bike, picking up my grand kids, lifting weights,
Have not been back to work in over a year because it prevents me from doing my physical duties of my job! Thats the negative side!
The positive side is i get to spend more time at home with my wife and grand kids
So i’m ok with the trade off:)
Replies to "@jules21 thanks and no at the time I was 57 years old and they and my..."
@brumasterj, well that just stinks!
You have always been the Poster Child for the HOCM and Camzyos to Septal Myectomy story.
I am sad to hear you have to undergo a reconstructive surgery on your sternum.
Sept 16 is almost here.
Thank goodness you have good support and a terrific attitude to carry you through the ups and downs of the Life Rollercoaster!
Are you going to the Mayo?
Do they know why this may have happened that your sternum did not heal?
Connect
@brumasterj Hello! Thank you for sharing your experience on taking and paying for Camzyos.
I'm sorry to read that you are going to have another surgery, at Mayo or closer to home? I hope this will be the one that cures it and you get to do those things you miss after recovery. This has been a very long year!
You are an inspiration in that your glass is half full, stating that the trade off is more time with your family. Please give an update as you move along, wishing you a successful procedure and a rapid and very low pain recovery.