@tomrennie
Im trying to hold it together for him and our 17 year old son.
It gets so hard at times. All I want to do is cry.
He has lost so much weight - he is just bones.
So depressing.

@tomrennie He has fought this so hard over the last 2 Years . We spent so much time with our Sons and their Families and we were able to get 2 good trips in but we are in the final phase now. He is sleeping all of the time and has stopped eating and drinking. Last week he was having a tremendous amount of anxiety so Hospice has put him on Lorazepam which has helped keep him very peaceful. You don't think about it but I think the anxiety for him was almost worse than the pain. His pain has been managed very well.
After 55 years together, I cannot imagine Life without him .

Thank you for asking. You are such a kind person and you are helping so many people while dealing with all of this yourself. I will continue to pray for you and hoping one day they find a cure for this . It really is a terrible disease and takes so much from everyone involved.