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Anyone living with Essential Thrombocythemia with JAK2?

Blood Cancers & Disorders | Last Active: 1 day ago | Replies (675)
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@loribmt
Thanks for sharing this news, Lori! To have another approved treatment option for ET after 30 years has to be some good news, especially for those for whom their current treatment isn't working.

I noticed in the study that the participants were chosen from those for whom hydroxyurea was no longer working or tolerated. The linked articles and the links in them were very informative.

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Replies to "@loribmt Thanks for sharing this news, Lori! To have another approved treatment option for ET after..."
Lori, Volunteer Mentor | @loribmt | 2 days ago

@cec2 From looking into more articles on the Besremi approval for ET, while the studies involved participant with whom HU was no longer an option, I couldn’t find anything that limited the drug to patients who had previously taken HU and failed.
Here’s what I found and posted in a reply to @eloise999 https://connect.mayoclinic.org/comment/1661218/

If you find anything to the contrary, please keep us posted. I’m sure there will be more feedback as patients/members check in with their hematologists. If HU has been working successfully for some patients there may not be the need to switch treatments.

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