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Talking Frankly about Living with Advanced Cancer
Cancer | Last Active: Jun 18, 2023 | Replies (508)Comment receiving replies
Just wanted to share...I'm thinking this is the place to share both good and bad...this is the reality of the journey I'm in. I was diagnosed early Nov 2018 and had ca 19 result of 419,300. (The highest one of my health professionals ever saw). started chemo and Feb 5 went down to 59,259. Since them my liver function blood tests have been steadily trending poorly . They took another ca 19 test last week. It's went up to 101,750. Had an MRI today, waiting for results. Doc is thinking we'll change chemo. I'm a skeleton compared to my pre-cancer self. I still feel like this is not real....
Replies to "Just wanted to share...I'm thinking this is the place to share both good and bad...this is..."
@lbern We each have a journey, filled with positive and negative. It equals 100% but is rarely overwhelming one or the other. Here we have the chance to vent, lean on a shoulder, ask for ideas, etc. I am sorry to hear about the recent tests. Trust your Dr's suggestions if you trust him. Is there a "wellness community" near you, or an in-person support group? It helps you along this path. We're here for you, at Mayo Connect.
Ginger
Connect
So sorry to read this, @lbern I am not familiar with what you are referring to with the CA 19 test.
If you don't mind I'd be interested in learning what it is.
Also, I support your 'the good and the bad' perspective here! It was exactly the fact I could 'be myself' here that made me come to and stick around Connect. Healthcare journeys are not always positive. I for one belive sometimes just saying (or typing) something outloud makes it far easier a burden to carry!
Good luck with the MRI results. Will be thinking about you!
Strength, courage, and peace