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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: 5 hours ago | Replies (676)Comment receiving replies
@1995victoria I get leg / bone pain at night occasionally. I think it has to do with water and exercise. Both seem to help eliminate the pain. But my Dr said I should only take Tylenol. I am on Hydrea 500 mg daily and low dose aspirin. Take care.
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@jfranz60 yes, my oncologist also said only tylenol. Luckily a friend told me to make appointment with pain mgmt doctor. As I told my oncologist, tylenol doen't do anything for my pain. I was taking tylenol and still had horrible bone pain, I kept asking oncologist (5 years) for something else, said no NSAIDS, only tylenol Pain Mgmt Dr confirmed that tylenol doesn't alleviate pain for everyone, bingo, that's me. I was rx'd tramadol for my bone pain. My bone pain is worse when I have a lot of activity during the day. and I agree hydration is important, dehydration can make pain worse.