Update to insurance denying Evenity.

Posted by rudysmom @rudysmom, 4 hours ago

Spoke to my Dr today. She said she figured insurance would deny Evenity because typically you either have to have had a fracture or a score of -3.0 or below. My spine is -2.7 and hips are -2.0. Insurance wants me to do Prolia first. I told her my issues with Prolia with the rebound effects and increase of spinal fracture after stopping it. I told her I’m 61 if I was in my 80’s then yeah maybe. She said she has patients that have good results with Prolia. Yeah I thought to myself until you stop it. The other choice is Reclast, she said with my issues with Fosomax and Reclast being a biophosonate she thought I’d be hesitant. She said I need to do something. I said I was going to call Evenity and see if I could get financial assistance. She didn’t think I would but said to try. I signed up on the Amgen website that offers the assistance. They gave me $8,000. Which wouldn’t probably cover 4 months of shots. I asked the Dr about Forteo and Tymlos and she said insurance won’t cover those either if they won’t cover Evenity. She said she knows the studies are saying to do anabolic meds first but insurance companies are the issue.

So now I’m not sure what to do. I’m going to call a menopause specialist and talk about a HRT patch. I don’t think it will increase my score but might hold it steady? Or I might go back on Fosomax. When I took it before I had severe pain in my right hip and I wasn’t able to roll over in bed for 2 nights. Then it’d go away. I might just deal with the pain for 2 nights. It didn’t bother me once I was up and walking, just lying down. Or I can try appealing my insurance denial too. Ugh

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Try appealing with the Dr's help. A lot if insurance companies back down once an appeal is filed. FWIW, I've had excellent results on Tymlos.

REPLY

I'm using topical HRT, it has stabilized my bone loss. My bone markers show this. My spine was -3.5.
Spine bone turnover is quicker than other areas.

Maybe consider doing HRT and using a lower dose of Fosomax.
Prevention of Osteoporosis (postmenopausal women): 35 mg once a week or 5 mg once a day.

Maybe the combination would be enough to move things back into osteopenia. And then you could stop the fosamax and just continue the HRT.

I chose the topical HRT and my dose is customized for me. Because i had allergic reaction to estradiol, so I needed a lower dosage, i also wanted lowest dosage possible and use topical becuase of family breast cancer history.

REPLY
Profile picture for oknowwhatpixie @oknowwhatpixie

I'm using topical HRT, it has stabilized my bone loss. My bone markers show this. My spine was -3.5.
Spine bone turnover is quicker than other areas.

Maybe consider doing HRT and using a lower dose of Fosomax.
Prevention of Osteoporosis (postmenopausal women): 35 mg once a week or 5 mg once a day.

Maybe the combination would be enough to move things back into osteopenia. And then you could stop the fosamax and just continue the HRT.

I chose the topical HRT and my dose is customized for me. Because i had allergic reaction to estradiol, so I needed a lower dosage, i also wanted lowest dosage possible and use topical becuase of family breast cancer history.

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@oknowwhatpixie
I didn’t realize there was a lower dose of Fosomax. I will definitely ask about that. I was thinking same thing that maybe HRT with Fosomax might be helpful.

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