Metastatic Breast Cancer: Really want and need to connect with others

Posted by hbbeckstead @hbbeckstead, Jan 10 6:39pm

I’m a breast cancer patient stage 4
MBC . I need to talk to those who are going through this or being through this. Need some informations on how they do with treatments or anything they did or doing that is helping them. Really need a group so l relate to with my issues please?
Thank you 🙏🏽

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Profile picture for wandering @wandering

I have metastatic breast cancer which is considered to be Stage 4. I was diagnosed 12 years ago and have utilized many different treatments. I am currently on Trodelvy (infusion). Some of my blood work is troublesome so my oncologist is going to look at my labs tomorrow and decide what to do next. While MBC is not considered to be "curable" but based on my experience it is "livable". When my treatments stop working I get changed over to something so living as long as possible makes different treatments possible. I am quite happy with my life and hope I can keep this going.

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@wandering
I haven’t seen your post for a while. I hope you’re doing well. Your experience and cheerfulness has given me so much hope as I face the possibility of lung and liver metastases. Thank you.

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Profile picture for myoga @myoga

@wandering
I haven’t seen your post for a while. I hope you’re doing well. Your experience and cheerfulness has given me so much hope as I face the possibility of lung and liver metastases. Thank you.

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@myoga
Update: Doing OK. Was taken off the Trodelvy infusion about 6 weeks ago. My labs were not going the right direction. They sent a blood sample out for DNA testing and I was switched to Orseru, which is a daily pill. I don't know how well it is working. My next appointment is September 16th. Wishing you the best, Jackie

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Profile picture for wandering @wandering

@myoga
Update: Doing OK. Was taken off the Trodelvy infusion about 6 weeks ago. My labs were not going the right direction. They sent a blood sample out for DNA testing and I was switched to Orseru, which is a daily pill. I don't know how well it is working. My next appointment is September 16th. Wishing you the best, Jackie

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@wandering
Thank you for responding! I’ll be praying for you that the new drug is effective and you’ll stay with us here for many years to come. Hoping for good news soon. Hugs.🥰

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Profile picture for myoga @myoga

@wandering
Thank you for responding! I’ll be praying for you that the new drug is effective and you’ll stay with us here for many years to come. Hoping for good news soon. Hugs.🥰

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@myoga
September will mark the start of my 13th year with MBC. Many people who know me seem surprised I am "still" around. Ha. Faked them out. J

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Profile picture for wandering @wandering

@myoga
September will mark the start of my 13th year with MBC. Many people who know me seem surprised I am "still" around. Ha. Faked them out. J

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@wandering
Wow! You’re hope. You don’t just stay alive. You’re living and enjoying it. We all need hope here.❤️

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