Unknown neurological cause (help)

Posted by condorbirdy @condorbirdy, 3 days ago

21 year old male have been bedridden with neurological issues with unknown cause. No triggers or change that I can think of. Came fast out of nowhere and now just my new normal

Got severe head pressure and head burning along with vision issues (halos, starbursts, everything looking too bright)

Severe brain fog and dissociation. Brain completely blank like brain dead

All of these are 24/7 for 18 months straight no break

Normal Brain CT
Normal CTA
Normal MRI
Normal EEG
Normal Bloodwork
B12, CRP, CBC, Chem 9, a1c, Lyte, creatinine, ALT
Normal TSH and PTH
Serology-Lyme IgG/IgM NEGATIVE
Normal ANA,ENA and Thyroid Antibodies
Negative EBV panel
Normal Urinalysis
Urine Drug All Negative
Urine heavy metals 24hr all normal
Autoimmune encephalitis/Paraneoplastic Blood+ CSF Negative

Doxycycline for 3 weeks did not help.
migraine meds didn’t help. Corticosteroids provided some temporary relief (not sure why)

I don’t have positional changes either.

Lumbar Puncture Results ( all normal with slightly high protein so far)

Lumbar Puncture Results
Opening Pressure 16
Leukocytes; CSF < 3x10\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\*6/L
Erythrocytes: CSF < 2000 x10\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\\*6/L
Neutrophils Segmented/100 Leukocytes; CSF 0.06
Lymphocytes/100 Leukocytes; CSF 0.78
Monocytes/100 Leukocytes; CSF 0.16
Glucose; CSF 3.7
Protein; CSF 0.59
Xanthochromia; CSF Absent
CSF; Culture No organisms or growth seen
IgG; CSF 0.023
Albumin; CSF 0.361
IgG Index; Serum+CSF 0.52
IgG Synthesis Rate; Serum +CSF < 0.10 mg/24h
Oligoclonal Bands; CSF Absent

Any suggestions on what I should I do next. Completely out of Ideas

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Profile picture for raehost @raehost

@condorbirdy in reply to your earlier post, of having neurological issues Your situation sounds close to some of my own issues. I see a doctor from Germany. Very few people know of it, but it sounds to me like you could have something called juggler vien compressions. I don't want to get on here and tell you, that's what you have, but it could be an option.

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@raehost interesting. What do you do for jugular vein compression?

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