Building bone before massive spinal surgery
I have severe osteoporosis, and adult onset scoliosis. On July 13, 2025, I had a high impact fall that greatly destroyed my already compromised spine. I have been bedridden since, finally cleared for PT a month ago, and am more mobile, but in 24/7 pain, worsening when standing, worse agony while sitting. My L1 vertebrae received a wedge fracture, which, after the fracture healed, caused kyphosis to become much more pronounced, and as a result, the ribs attached from there are collapsing forward, “sitting on my pelvis”, as the orthopedist described.
There is strange, intense pain in the frontal ribs from the wedge shaped fracture.
After multiple, multiple efforts with osteopaths, Feldenkrais, PT, gentle exercise walking, Alge Cal, et al, surgery seems the only option now. I am terrified, suspect and trying to find courage.
First step is to see an endocrinologist tomorrow to determine which bone building drug to take. More terror. I do not know how to pay for these expensive drugs, I am on Medicare, which I doubt my Part D plan will pay. And two, side effects. I have had intractable migraine since age 5, am 74 now. If headaches as a side effect tip that scale I cannot go on. The migraines are diabolical, lasting for days in blinding pain. . I have one new med that sometimes aborts ~ I’ve taken every migraine med to no avail.
I would appreciate any help / suggestions about Forteo and the other new bone building drug and any other helpful input. I have great access to the dark side, so in relation to the surgery, which is extensive, 🌟PLEASE no horror stories, I know them all. Thank you for understanding.
There are two thoughts: one is to have the surgery soon, taking the bone support drug alongside; the other is to take the med for awhile to build bone, then do surgery. The issue is, my spine has gotten much worse, about 40%, since the fracture healed and complications arose, so waiting means more worsening. Not waiting means possibility of the bones not being strong enough to support the hardware put into the spine, so more fractures, more surgeries.
I do not know how my life has come to this point. I am an active woman, potter, art teacher, yoga teacher… and now this.
Thanks to all for any thoughts.
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@nliebrecht
Thank you so much for your very helpful reply. I have really been agonizing over this decision. When you get a chance, I have two follow-up questions:
1. About how long after your surgery did you get your Prolia injection?
2. Did your surgery involve spinal fusion, and if so, has it fused well?
Thank you again!
I got my first Prolia injection about four and half months after surgery. I was driving by then and getting around pretty well. My surgery did involve a spinal fusion. It was pretty major, but my surgeon was darned impressed with how well I did. I was able to get myself out of bed and walk around the hospital very quickly. There were two problems, though, I got a nasty UTI exacerbated by the catheter, and I told my surgeon that there is a new catheter invented by the University of Pennsylvania that minimizes these infections. I have a one-year check-up in December, and I think that I will remind him that the hospital needs to get those catheters. A second problem was the food in the hospital. You have to eat a lot of protein after these surgeries, and I was given Ensure with every meal, which I cannot stand. I made them bring me a dish a plain yogurt with every meal, but you might ask your support team to provide you with some decent high protein food. It is a rare hospital that has good food.
These are difficult surgeries, but I needed to have this done. My spine was so out-of whack from unevenly compressed discs that I had two spontaneous spinal fractures several months before the surgery. There was no trauma. I did not fall, and my bone density was not that bad. It was rather like the column in a building failing because it just could not bear the load. So, while I never want to have another surgery like this again, it had to be done. I am now doing well. I walk two miles every other day, I am gardening. and I am largely pain free. As mentioned, I have lost some flexibility, and I seem to pull muscles more easily than I used to, but otherwise life is good. I hope this helps.
P..S: Get yourself in the best physical condition possible before the operation.
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2 Reactions@nliebrecht Thank you so much for all of this additional information. It is wonderful of you to share so much with me today. Just one last question for clarification: In you first reply to me you said you stopped Evenity a few weeks before surgery, and in this reply you said that you got your first Prolia injection about 4.5 months after. Does this mean that you did not take any osteoporosis medications for about 5 months between Evenity and Prolia? Since you healed well, I am interested in knowing the medication sequence. Thanks again!
Yes. I took no osteoporosis medication for several months after stopping Evenity.
@ibarrow Simply an FYI, as I am not medically trained...just sharing what my ortho recently shared with me: All of the spine specialists in their group prefer and use Tymlos. I simply share this, so you may include that option in your discussion with the spine specialist you eventually land with. I believe you have been on a bisphosphonate previously, which may suppress some of your anabolic bone building meds for a bit. If that is correct, you may also want to speak with your spine surgeon as well about that. Best wishes to you!