Has anyone been diagnosed with pseudopheochromocytoma

Hi. A lot of doctors don't know about this. Research Dr. Samuel Mann and pseudopheochromocytoma. His specialty is resistant hypertension. He is a pioneer in identifying it. My provider didn't believe it either but much to her credit she took the time to look into it. On one of my follow up appointments I had several articles by Dr. Mann and she also had a couple to give me by him. She knows my history and what I've been through and his papers made her a believer. I started out on Toprol, 100 mg, doxazosin 3 mg, which is now changed to atenolol 12.5 mg and terazosin 1 mg. I also take Zoloft 50 mg. So my dosage is way down and blood pressures controlled. I had insomnia for several months on Toprol due to the it being fat soluble and crossing the blood brain barrier. Atenolol was a game changer but it does give me non allergic rhinitis which is annoying but tolerable. From what I understand the alpha blocker add on is important but I'm not sure why. Dr. Mann addresses it. Maybe this is the missing piece for you? I also have clonidine and Xanax as rescue but seldom use them anymore. When this came to a head for me over the summer, I was in the ER 3 times. I know what you're going through. When you go into fight or flight mode for no apparent reason its awful. I fully believe this is a mind body syndrome. Mann has a book, "Hidden within us" that you might find helpful. In it he references Dr. John Sarno who also identifies this as mind body. I'd suggest you look into Sarno's books as well. I think his first was "healing back pain", "the divided mind" is another. I know the feeling of isolation. I think a lot more people have this but it's put under the umbrella of labile hypertension. The difference between this and a panic attack is there's nothing that provokes it, it comes out of the blue. I hope this helps some. Also for you mkent who posted on 12/30.