@hissteps4u
I’ve been CLL positive on & off since 2017 & monitored quarterly since 2023 & had virtually no symptoms. Starting to show border low hemoglobin test results. Doctor insisted I start Zanubrutinib & denied by ins. I started Calquence. 30 days past & numbers started normalizing. 6 Calquence pills taken from prescription 2 making 33 days total and the pains in feet & hands were unbearable painful burning….. can’t eat sleep or normally function. Numbers deteriorated Doctor started Zanubrutinib, 3 days 6 pills same unbearable burning pain in feet hands stopping the medication. 1 month later my blood test numbers are now abnormal and symptoms of enlarged spleen, shortness of breath, hair falling out and weakness are surfacing and I’m told it’s not from the failed prescriptions therapy. Now Doctor want to start infusion and pill therapy and I’m skeptical of future treatment. What do ya think ?