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Talking Frankly about Living with Advanced Cancer

Cancer | Last Active: Jun 18, 2023 | Replies (508)

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@saltis

Hi friends,
Everybody tells me that I look fablous & not at all sick. Nobody ever told me that I look fab when it was important & I wasn't sick. 22 years of cancer & now for the last 3 years stage 4 & it has spread to my chest, too. Hopefully I would start my new treatment on Tuesday and by then I hope to be able to breath as before, normally. My new chemo is based on pills Capecitabin, 8 ones everyday in two weeks time & then a rest week & then I would continue two other weeks.
Sometimes I feel that my oncolog is a bit intimated by me and blurbs out words or phrases that are not so diplomatic but he is a human being and my fablousness puts him in disadvantage, lol! Like while treating my lung problem I started to notice that my right breast which was operated and a fourth of it was taken away is losing it's form and now is stuck like a clump on my chest and is a very little thing. Anyway he has never seen anything like it and then he tells me that I have lived quite a long time with my cancers and must expect organ failures in future. I asked him is there anything I can do?
He told me No, just don't expect too much! You mean no biggest lottery Prize? Between us I still feel that I am lucky and I have my family & friends around me. When I can breath I feel lucky & everything would work out for the best somehow.
Take care folk and enjoy your day, night ...

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Replies to "Hi friends, Everybody tells me that I look fablous & not at all sick. Nobody ever..."

Hi Nancy, @shortshot80

I am sorry to hear that you aren't feeling well, Nancy. I hope that you will begin to feel better soon.

Have you had this type of side-effect from transfusions before? Perhaps you need to call your doctor's office and let them know how you are feeling.

Keep us posted on how you are feeling. I'll be praying for you.

Teresa

Hi Teresa. a, feeling better than I was this morning. That was my first blood transfusion I have ever had. I felt pretty good yesterday, don't know what happened today, but I am feeling a little better this evening. Thanks for the prayers. By the way, my lungs are better according to the cat scan. I can even breathe better. Nancy

Nancy, @shortshot80

That is such good news about your breathing being better and that your scan showed improvement with your lungs - that is good way to start the new year.

Will you be having a new chemo treatment any time soon?

Teresa

Teresa) I had a blood (t2o unites) last Friday.. Saturday was a ok day Yesterday and today was not so good(dizzy, stumbling out of sorts) don't know what is wrong. Had a blood test this morning, ( went to the bathroom, upon leaving the door was hard to push got my cane caught with the door and really hit my right hand on the back of my hand and now have a inch by inch skin tear on the back of my hand. Now yes I will have chemo tomorrow so fare every three weeks...... Makes for a long day. My appt for tomorrow is I have to be 60 miles away for chemo at 9:30 am. However long this takes, also have a kidney doc appt at 2;30l.....makesfor a long day! Nancy (shortshot80)

Nancy, @shortshot80

Yes, you will have a long day - I'll be praying that all goes well for you.

Teresa

Made me smile when you wrote "Nobody ever told me I looked fab when it was important" and then it made me sad. I wish you had support when it was important, but know that you are making up for it now ! Connect gives you so much support!!!!! and you can tell people mean what they say , they have been thru it(what ever it is), What bothered me the most about what the Dr. said was Don't expect to much....WHAT ...I expect everything!!... I expect to be treated like an intelligent human being....I have earned the right to be respected.....I WILL maintain my dignity till the end...AND MOST IMPORTANT .... I expect...no I KNOW.....that God has a plan...I don't know what his plan always is but I trust him.....Nine years ago I was told I had months to live and here I still am.. it has been a difficult journey but with all the prayers and support in every direction I am able to LIVE my life...not the same life I will admit but I able to continue with HOPE and acceptance. I am no angel I get very! frustrated sometimes(read some of my past posts LOL) but with help I work thru it. Well ...will quit rambling for now. I admire your strength and sometimes some Dr.'s need to be put in their place! LOL

You are so right. I really enjoy life & love hanging out with the loved ones and new friends. I see my grand daughter grow and one is on his way to this world of us, too. I made thru flu which took a month & everybody specially my doctors were quite worried after my lungs malfunction and the following operation to restore it's function. But anyway life is good & sharing the love with others, even better.
Take care,

Hello @saltis

Your post brightened my day! I appreciate the positive attitude you have managed to maintain. I am glad to hear that you got through a rather tough bout of the flu.

Teresa

Thanks Teresa for your kind letter. Take care❤️