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Talking Frankly about Living with Advanced Cancer

Cancer | Last Active: Jun 18, 2023 | Replies (508)

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@saltis

Hi friends,
Everybody tells me that I look fablous & not at all sick. Nobody ever told me that I look fab when it was important & I wasn't sick. 22 years of cancer & now for the last 3 years stage 4 & it has spread to my chest, too. Hopefully I would start my new treatment on Tuesday and by then I hope to be able to breath as before, normally. My new chemo is based on pills Capecitabin, 8 ones everyday in two weeks time & then a rest week & then I would continue two other weeks.
Sometimes I feel that my oncolog is a bit intimated by me and blurbs out words or phrases that are not so diplomatic but he is a human being and my fablousness puts him in disadvantage, lol! Like while treating my lung problem I started to notice that my right breast which was operated and a fourth of it was taken away is losing it's form and now is stuck like a clump on my chest and is a very little thing. Anyway he has never seen anything like it and then he tells me that I have lived quite a long time with my cancers and must expect organ failures in future. I asked him is there anything I can do?
He told me No, just don't expect too much! You mean no biggest lottery Prize? Between us I still feel that I am lucky and I have my family & friends around me. When I can breath I feel lucky & everything would work out for the best somehow.
Take care folk and enjoy your day, night ...

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Replies to "Hi friends, Everybody tells me that I look fablous & not at all sick. Nobody ever..."

(shortshot80) Nancy @saltis....You are having quite a journey, you could write a chapter for your new book on how a oncologist treats people. Who eventually might get his vocal wording more positive than negative conversations. To me things/words are demeaning and uncalled for. You already know what is happening in your life and you do not need anything more to make you feel useless. I pray that things will/can be better for you. I have two kinds of lung cancer. I have been only two years with this and my friends/family keep me on level ground. I am 84 and also know I will not live forever, however I do not need any negative words or people around me. I have my church which I attend every week and some times various functions. I feel very comfortable in either situation.I am very lucky. I pray that things will be better for you and people with encouraging words and actions for you. Blessings....... Nancy

@saltis I so appreciate your posts! Your attitude is exceptionally healthy - thanks for sharing it with the rest of us. Teresa

You have such insight! I can just imagine the oncologist being overawed by your fabulousness. I hope the new chemo gives you normal breathing so you can wow everyone even more.

Good for you! I mentally enjoy the image of you setting your oncologist back on his heels! I don't condone disrespect, in either direction. Dignity is our right, compassion and professionalism is their obligation.
Stay awesome!
Vicky

December 6th Shortshot80, haven't beenhere for several days so thought I would catch up. Things have been going good, (tired) but good. There were several Christmas Bazaars held in the area last Saturday. Bob jr droe me around. First one I bought a Cribbage board for Bob sr., and then I found a bunch of hats. Knitted/crochet. All colors, well I found one had that was multi colored. Best siven dollars I've spent in a long time. It will match anything and everything I wear. Anyway I went to chemo yesterday 65 miles) and everyone really liked my hat. Wore it again this morning to primary doc for a change in meds. He liked it to with remark "what a hat!. Last night I did not sleep very good, don't know why but...woke up several times and got up at 4;30 and poured myself a cup of coffee. and a small donut to have with my medicine. Then today was doctor, wash clothes and fold them. Then a nap. Now to fix something for dinner.Busy couple of days. Have a great rest of your day. Nancy

Hi Nancy, @shortshot80

Thanks for checking in, I'm so pleased to hear about your hats and the cribbage board! Bazaars can be such fun - especially when you are able to find things that you really like. It feels good to have lots of color, doesn't it?

I hope you are able to take it easy for the next day of so. It sounds like you could use a rest.

Teresa

Hi Teresa, (shortshot80) I really like color, It raises my personal feelings a whole lot. Today I am going to make some whit fudge with cranberries in it. I have a "tea" to go to tomorrow and am supposed to bring a finger food. Also I received a call from my Pastor's daughter who will be 11 tomorrow, to come to her birthday party and her dad will pick me up. That really pleased me. I haven't been to a kid's BD party in years. I went through my cook books and picked out a "cookie" book which is old, printed in 1986 and another cook book which also is old 1960, has several riseipe's and I put a note in and requested that she read the book to her little brothers. Ssounds like I will have some fun both on Saturday & Sunday. Nancy

Hi Nancy, @shortshot80

You will have great fun!! The birthday party especially sounds good. I like the "cookie" book idea, that is a winner!

Teresa

shortshot80) hello everyone. Friday Jan. 12, I went to my oncologist. My cat scan has helped and I can breath better. But my blood count was low so had to have a blood transfusion. They started the transfusion around 1:30pm and it wasn't cone till 7:pm. Two units. Yesterday I just rested watch tv an rested some more. Today is not so good. Could not sleep bat 2am just simi slept. Tried to get up and was so dizzy I sat down. Then after a few minutes got up and got a cup of coffee, and then started to shake. In typing this I shake and hit too many letters. Wrong ones at that. Don't know what to do about that. Hopefully it will it will get better. Nancy

Teresa I wrote a little bit and the compter put it in the wrong place. It is dated Jan 12 and it put it just below this one Dec 6th. Perhapes you can move it into the January. Nancy