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I was diagnosed with RLS over 35 years ago when I had a sleep study. I took Requip for years but I stopped taking it. I am taking nothing now because of the side effects of the usual meds. The pulmonoligst and a sleep neurologist both said I got nothing for you. I live in the Peoria, Il area and there are few doctors that practice this. I do wake up frequently at night but have no problem going back to sleep. I sleep 7 to 7 1/2 hours at night but usually feel tired when I wake up. My knees hips and back hurt when I get up and after I move around it feels better. If I sit down or read I will fall asleep after a couple of hours. I was diagnosed with hypersomnia by a sleep study last year. It was noted in the study that I have 60 leg movements an hour but doesn't seem to concern anyone but me. I believe that the leg movements interfere with my sleep and are the cause my hypersomnia but can't convince anyone else.
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@shakota
Hi Shakota,
Wow, it appears the medical staff you are seeing, are dismissing you with a wave of their hand, and tell you to live with it, and there is nothing else to do.
I would seek help in the Chicago area, Cleveland has a very good medical center as well. If you have a teaching hospital nearby, with neurological care, I would seek them out. I know in today’s age, you need to wait a long while for an appointment. You didn’t list your age, but I worry about as you do age, ignoring the help you need. I am 71, and I fear when I am 80-85, what my life will be with this dreadful ailment.
There are bands approved by the government to wrap around your legs. You can research this.
This is the beauty of our country, you are able to visit a number of doctors for help. Like you, I didn’t take any medication, almost two years ago, as I thought it was a pinched nerve. The PLMD kept my husband up. One drug I wouldn’t advocate is methadone. A neurologist from the Barrow Institute placed me on methadone, 10 mg, and the panic attacks were frightening!
After one month, I quit that, and him.
Please keep all of us updated on your journey.